Holy Shit. A Full Freakin’ Year?!

I realized my last post was in August of last year! I went over a year since my last post! Damn.

I have no excuse.

Okay, now I’m going to list all of my excuses. -snerk-

Most of it has to do with Thing 3’s health issues. They haven’t gotten better but worse. In fact, I’m now working full-time from home because I was having to take her to the doctor so much, the hospital decided to let me work from home. They gave me a laptop and the rest is history.

Last July she was diagnosed with pain amplification syndrome and hyperflexibility and told to do intense physical therapy. She started the physical therapy and…got worse. In fact, exercising seemed to bring on a fever, more body aches, sore throat…and then, she actually passed out during one of her sessions. Since then, she’s been going to the Chicago Children’s Hospital’s pain clinic, which they no longer think she has the pain amplification syndrome but autonomic dysfunction, Ehlers- Danlos syndrome, and POTS disease. Next month she goes to more specialists to see if she has those conditions, and if so, then it’s on to Mayo Clinic for a few weeks to figure out exactly what type of autonomic dysfunction, what kind of exercises she can do, and what foods she can eat. Her condition has worsened quite a bit since a year ago, and now simply standing for 20 minutes to bake a cake is almost too much for her to do. Her body seems to be set on a setting of pain, so she’s in constant pain–it never lets up. A good day for her is a pain rating of 6. A bad day for her is to be in such excruciating pain that simply touching her makes her scream. The last time that happened she had been swimming for an hour and apparently it sent her body into such a mess that she was pretty much comatose for five days.

In the meantime, I’ve been working odd hours, taking her to school when she can go, and trying to keep up with housework, yard work, and writing. Last year she tried going to school for 4 hours a day, but that got to be too much so that she ended up missing six weeks straight. For second semester, she went three days a week for an hour each time with one-on-one sessions with a teacher.

This year the school started up a new blended learning which is a combined online/onsite schooling. Some kids do all of their schooling online, others might only do a class or two online and do the rest of their schooling in the classroom. She goes in when she can, but she does most of her schooling at home online. It’s great because she gets to be around other kids who are doing the same program, and when she needs extra help, she can go in and a teacher is there to help her. The classroom is pretty cool too. There are lounge chairs with tables, a high table with barstools, and a worktable with chairs and desktops. There are laptops for the kids to use and a fridge for drinks, lunches and snacks, or the kids have the option to eat lunch with their grade.

Other than that, I’m working on revising my query letter. Mine is pretty good, but I’m sure I can make it better. I feel like I’ve been working on this book for forever and I just want it done!


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